Wednesday, February 29, 2012

Heidi Janz Video

Yesterday I watched this show on TV about Heidi Janz, someone I know who has a lot to say about what it means to have a disability and what it means to be a human being. I did an interview with Heidi previously on this blog.

Saturday, February 11, 2012

Helping Families on Valentine's Day


This year for Valentine's Day, I am trying to help others who have the same health challenges that I have (MECP2 Duplication Syndrome). Even though many of them have faced much tougher challenges than I have believe me, I know how tough it can be for them and their families, and I would really like to give them some hope. They are trying to raise some money for research that might help find a "cure" for this syndrome.

Please consider opening your heart in honor of Valentine's Day and supporting their efforts with a few dollars. You can donate using PayPal at my Project 401 Page. If you want to use a credit card or send a check, you can do that through a the MECP2 Duplication Syndrome Page at the Rett Syndrome Research Trust (RSRT). If you live in the US, RSRT can also issue a tax receipt if you want one. They needed $80,000 to get this research started and  they have raised about $30,000 so far, so they still have a long way to go. Families around the world are trying to do their part, I want to do my part, and I am hoping that you will help.

If you want to know more about this and why I think you should help, you can read about it on the MECP2 Duplication Syndrome Blog.